On May 20, 2014 a group of family/friend caregivers (herein called care partners), care providers, educators, administrators, policy makers, researchers and other professionals from the community, social service, and private sectors participated in a one day, Canadian Institutes of Health Research (CIHR, Grant No. DGE 129655) funded workshop titled: Knowledge Translation in Dementia Care: It Takes a Community, in Toronto, Ontario. As a result of post-workshop discussions, three project products (Action Plan, Educational Guide, Policy Brief) were developed. Please feel free to share them with others involved in dementia and dementia care.

Policy Brief
Action Framework
An Educational Guide

Advocating for Hilda: Advocating for equitable home-based dementia care services

In the spring of 2010, the investigative team for the Home-based Dementia Care study collaborated with Dr. Mark Speechley – an epidemiologist at Western University’s Schulich School of Medicine and Dentistry by day, a playwright and active member of the local theatre.t. Mark worked with thematic summaries of the data analysis and with the investigative team to develop a two-scene stage play that brings to life the negotiations inherent in home-based dementia care relationships.

In order to invite stakeholder feedback, the first drafts of the stage play were read aloud at two gerontological conferences – the Alzheimer Society (Middlesex-London)’s Annual Caregiver Conference (London, November, 2010), and the Annual Scientific and Education Meeting of the Canadian Association on Gerontology (Montreal, December, 2010). As a result of these -performances, the team modified several lines of the play as well as a number of stage directions.

Currently, with funding support from the Canadian Dementia Knowledge Translation Network (http://www.lifeandminds.ca/), we ‘workshopped’ the play by arranging for community dementia care providers to see the play and to participate immediately afterward in focus groups. The  stage play was made into a screenplay so that it will be  distributed more broadly.

An Educational Guide

1. St-Amant, O., Ward-Griffin, C., Hall, J., DeForge, R., McWilliam, C., Forbes, D., Oudshoorn, A. (in press). Making care decisions:  Client-caregiver-provider relationships in home-based dementia care. Canadian Journal on Aging.
   
   
2. Ward-Griffin, C., Hall, J., St-Amant, O., DeForge, R., McWilliam, C., Forbes, D., Oudshoorn, A., Kloseck, M., (2012). Dementia home care resources: How are we managing? Journal of Aging Research (volume 2012), 11 pages, doi:10.1155/2012/590724.
   
   
3. Forbes, D., Ward-Griffin, C., Kloseck, Mendelsohn, M., St-Amant, O, & DeForge, R. (2011). My World Gets Smaller and Smaller With Nothing To Look Forward To: Dimensions of Social Inclusion and Exclusion Among Rural Dementia Care Networks. Online Journal of Rural Nursing and Health Care, 11(2)
   
   
4. Ward-Griffin, C., & Bol, N. (2007). Mother-Daughter relationships within the care process of dementia: The daughters’ perspective. In I. Paoletti (Ed.), Family caregiving to older disabled people: Relational and institutional issue. (pp. 177-200). New York: Nova Science Publishers.
   
   
5. Ward-Griffin, C., Oudshoorn, A., Clark, K., & Bol, N. (2007). Mother-adult daughter relationships within dementia care: A critical analysis. Journal of Family Nursing, 13, 13-32.
   
   
6.    Ward-Griffin, C., Bol, N., & Oudshoorn, A. (2006). Perspectives of women with dementia receiving care from daughters. Canadian Journal of Nursing Research, 38(1), 120-146.
   
   
7.    Brown, D., McWilliam, C.L., & Ward-Griffin, C. (2006). Nurses’ experience of a flexible client-driven approach to in-home care. Journal of Advanced Nursing, 53(2), 160-168.

International Presentations

1. Ward-Griffin, C., McWilliam, C., Kloseck, M., Orange, J.B., Wong, C., & DeForge, R., St Amant, O., Sutherland, N. (October 19, 2012). Navigating Community Dementia Care : Relationships Matter.  The Canadian Association on Gerontology's 41st Annual Scientific and Educational Meeting, Vancouver, Canada.
   
   
2. Ward-Griffin, C., McWilliam, C., Kloseck, M., Orange, J., Wong, C., & DeForge, R. (October 24, 2012). Navigating the Community Dementia Care  System. 2012 Home Care Summit. Vancouver, Canada.
   
   
3. Ward-Griffin, C., McWilliam, C., Orange, JB, Kloseck, M., Wong, C., DeForge, R. (Oct 2011). Building partnerships in community-based dementia care: a critical constructivist grounded theory. Qualitative Health Research Conference 2011, Vancouver, Canada.
   
   
4. DeForge, R., Ward-Griffin, C., & Speechley, M. (2011). Research-based theatre as a catalyst for transformation. International Institute of Qualitative Methods – Qualitative Health Research conference, Vancouver, BC, October 2011. International Journal of Qualitative Methods, 10 (4), 499.
   
   
5. Ward-Griffin, C., McWilliam, C., Klosek, M., Orange, J.B., Wong, C., DeForge, R. (March, 2011). Enabling partnerships among people with early stage Alzheimer’s, family caregivers and Providers. Alzheimers Disease International 2011, Toronto, Ontario.
   
   
6. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Oudshoorn, A., St-Amant, O., DeForge, R. (2009, October). Promoting transformational change in dementia homecare for seniors. The 8th International Elder Care Conference, Toronto, Ontario.
   
   
7. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Oudshoorn, A., St-Amant, O., DeForge, R., Mowat, J.  (2009, June). A critical analysis of home-based dementia care: Where have all the nurses gone? International Family Nursing conference, Reykjavik, Iceland.
   
   
8. Ward-Griffin, C., Oudshoorn, A., Clarke, K., & Bol, N. (2007, June). Mother-Daughter relationships within dementia care: A critical analysis. The 8th International Family Nursing Conference (IFNC).Bangkok, Thailand.
   
   
9. Ward-Griffin, C., Oudshoorn, A., Clark, K., & Bol, N. (2006, September). Mother-Daughter relationships within dementia care: A critical analysis. The 5th International Conference, Older People Deserve the Best: The Key to Excellence in Elder Health and Elder Care. Toronto, Ontario.
   
   
10. Ward-Griffin, C., Bol, N., & Oudshoorn, A. (2005, February). Interviewing people with dementia: Methodological considerations. The Sixth International Interdisciplinary Conference. Advances in Qualitative Methods. Edmonton, Alberta.
    
    
11. Ward-Griffin, C., Bol, N., & Oudshoorn, A. (2004, July). Mother-Daughter relationships within the care process of Alzheimer disease: Daughter perspectives’. Sigma Theta Tau 15th International Research Congress. Dublin, Ireland.
    
    
12. Ward-Griffin, C., Brown, J. B., Vandervoort, A., McNair, S., Melles, P., & Oudshoorn, A. (2003, October). Health professionals as family caregivers of elderly relatives: Building policy through partnerships. The Second International Elder Care Conference. Toronto, Ontario.
    
    
13. Ward-Griffin, C., Bol, N., & Hay, K. (2001, July). Negotiating boundaries in long-term care: Implications for practice and policy. The 17th World Congress of the International Association of Gerontology. Vancouver, British Columbia.
    
    
14. Ward-Griffin, C., Brown, J. B., Vandervoort, A., & McNair, S. (2001, July). Eldercare in an aging society: Analysis of health professionals’ work and family lives. The 17th World Congress of the International Association of Gerontology. Vancouver, British Columbia.
    
    
15. Ward-Griffin, C., Bol, N., & Hay, K. (2001, May). Role of the family in long-term care: Ally or adversary? The 2nd International Research Conference: Health Care in a Complex World. Toronto, Ontario.
    
    
16. Ward-Griffin, C., Bol, N., & Hay, K. (2001, February). Nurse-family relationships in long-term care. The 2nd International Interdisciplinary Conference: Advances in Qualitative Methods. Edmonton, Alberta.

National

1. Ward-Griffin, C., McWilliam, C., Kloseck, M., Orange, J., Wong, C., & DeForge, R. (October 2011). Partnering, navigating and refining. A critical grounded theory of building partnerships in community dementia care. (Abstract submitted for an oral presentation at) the Canadian Association on Gerontology's 40th Annual Scientific and Educational Meeting, Ottawa, Canada.
   
   
2. DeForge, R. & Ward-Griffin, C. (October 2011). Stories of (infusing critical scholarship) into Gerontological scholarship. Canadian Association on Gerontology’s 40th Annual Scientific and Educational Conference, Ottawa, Canada.
   
   
3. Ward-Griffin, C., DeForge, R., St-Amant, O., & Hall, J. (December 2010). Advocating for equitable dementia homecare services: Linking practice, policy & research. Canadian Association on Gerontology 39th Annual Scientific & Education Meeting, Montreal, Canada.
   
   
4. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Oudshoorn, A., St-Amant, O., DeForge, R. (2009, October).  Resource management in dementia homecare: Merging divergent perspectives.  Canadian Association on Gerontology 38th Annual Scientific & Education Meeting, London, Canada.
   
   
5. Ward-Griffin, C., McWilliam, C., Oudshoorn, A. & Krestick, E. (2008, November). End-of-life home care for seniors and their caregivers: Exploring the practice patterns of nurses. The Gerontological Society of America 61st Annual Scientific Meeting. National Harbour, Maryland, USA.
   
   
6. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Bol, N., Mowatt, J., Oudshoorn, A., St-Amant, O,  DeForge, R., & Chabot, S. (2008, October). Negotiating relationships-navigating positions in home-based dementia care: A critical analysis. Canadian Association on Gerontology 38th Annual Scientific & Education Meeting, London, Canada.
   
   
7. Ward-Griffin, C., Oudshoorn, A., St-Amant, O,  DeForge, R. (2008, October). Examining relationships within home-based dementia care: Lessons learned in the field.  Canadian Association on Gerontology 38thAnnual Scientific & Education Meeting, London, Ontario.
   
   
8. St-Amant, O., Ward-Griffin, C. & Forbes, D. (2008, October). Sibling/Sibling-in-law relationships in home-based dementia care of older relatives. Canadian Association on Gerontology 38thAnnual Scientific & Education Meeting, London, Ontario.
   
   
9. DeForge, R., St-Amant, O., Oudshoorn, A., Chabot, S., & Ward-Griffin, C. (2008, June). Negotiating home-based dementia care: A critical ethnography. National Initiative for the Care of the Elderly (NICE) Knowledge Exchange. Toronto, Ontario.
   
   
10. St-Amant, O., Oudshoorn, A., DeForge, R., Chabot, S., & Ward-Griffin, C. (2008, June). A critical analysis of dementia care networks: Homecare providers' perspective. Annual NICE Knowledge Exchange of the National Initiative for the Care of the Elderly. Toronto, Ontario.
    
    
11. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Bol, N., Mowat, J., et al. (2008, May). Client-family-provider relationships in dementia home care: A critical analysis. The 2nd National Community Health Nurses Conference: Shaping the Future of the Community Health Nurses Association of Canada. Toronto, Ontario.
    
    
12. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Bol, N., Mowat, J., et al. (2008, June). Rationalizing norms of care provision in home-based dementia care: A critical analysis. Canadian Public Health Association 2008 Annual Conference: Public Health in Canada: Reducing Health Inequalities through Evidence and Action. Halifax, Nova Scotia.
    
    
13. Ward-Griffin, C., McWilliam, C., Forbes, D., Klosek, M., Bol, N., Mowat, J., et al. (2008, May). Managing resources in home-based dementia care: A critical analysis. Community Health Nurses Association of Canada, 2nd National Community Health Nurses Conference: Shaping the Future. Toronto, Ontario.
    
    
14. Oudshoorn, A., St-Amant, O., Clark, K., & Ward-Griffin, C. (2007, November). Negotiating care: Power relationships within families providing home-based dementia care. The 36th Annual Education and Scientific Meeting. Canadian Association on Gerontology. Calgary, Alberta.
    
    
15. Ward-Griffin, C., McWilliam, C., Krestick, E., & Oudshoorn, A. (2007, May). Client centered versus family centered home-based palliative care: Nurses’ perspectives. Community Health Nurses Association of Canada 1st National Conference. Toronto, Ontario.
    
    
16. Ward-Griffin, C., McWilliam, C., Oudshoorn, A., & Krestick, E. (2005, October). Client-family-nurse relationships within palliative care: Clients’ perspective. The 34th Annual Scientific and Educational Meeting. Canadian Association of Gerontology. Halifax, Nova Scotia.
    
    
17. Ward-Griffin, C., Bol, N., Oudshoorn, A., & Clarke, K. (2005, October). Mother-daughter relationships within dementia care: a transformative process. The 34th Annual Scientific and Educational Meeting. Canadian Association of Gerontology. Halifax, Nova Scotia.
    
    
18. Oudshoorn, A., Ward-Griffin, C., & McWilliam, C. (2005, October 21). Nurse-client relationships in home-based palliative care for seniors: A critical analysis of power relations. Canadian Association on Gerontology: Navigating the Winds of Change. Halifax, Nova Scotia.
    
    
19. Ward-Griffin, C., Bol, N., & Oudshoorn, A. (2004, September). Understanding mother-daughter relationships within Alzheimer disease. The 33rd Annual Scientific and Educational Meeting. Canadian Association of Gerontology: Diverse Perspectives. Toronto, Ontario.

Provincial/Regional

1. St-Amant, O., Ward-Griffin, C., Brown, J., Kerr, M., & Sutherland, N. (2011, May). Policy and practice implications for double duty caregivers: A critical-structural health promotion approach. The 2nd  Annual Research Conference 'Nursing Research: The Path to Excellence' of the Iota Omicron Chapter Sigma, Theta, Tau Honor Society. London, Ontario.
   
   
2. Ward-Griffin, C., St-Amant, O., DeForge, R. (November 2010). Advocating for Hilda. Navigating the Road Ahead: A conference on caregiving. Alzheimer Society, London, Ontario.
   
   
3. St-Amant, O., Oudshoorn, A., DeForge, R., Chabot, S., & Ward-Griffin, C. (2008, May). A critical analysis of dementia care networks: Homecare providers’ perspective. The 21st Annual Research Conference 'Nursing Research: The Path to Excellence' of the Iota Omicron Chapter Sigma, Theta, Tau Honor Society. London, Ontario.
   
   
4. St-Amant, O., Ward-Griffin, C., & Forbes, D. (2008, May). Sibling relationships in home-based dementia care. The 27th Annual Conference for the Ontario Gerontology Association, Toronto, Ontario.
   
   
5. DeForge, R., St-Amant, O., Oudshoorn, A., Chabot, S., & Ward-Griffin, C. (2008, March). Negotiating home-based dementia care: A critical ethnography. Faculty of Health Sciences Research Day, The University of Western Ontario. London, Ontario.
6. DeForge, R., St-Amant, O., Oudshoorn, A., Chabot, S., & Ward-Griffin, C. (2008, March). Negotiating home-based dementia care: A critical ethnography. Health & Rehabilitation Science Student Research Day, Elborn College, The University of Western Ontario. London, Ontario.
   
   
7. DeForge, R., St-Amant, O., Oudshoorn, A., Chabot, S., & Ward-Griffin, C. (2008, February). Negotiating home-based dementia care: A critical ethnography. Aging, Rehabilitation & Geriatric Care Research Centre – UWO Faculty of Health Sciences 2008 Symposium. London, Ontario.
   
   
8. Oudshoorn, A., St-Amant, O., Clark, K., & Ward-Griffin, C. (2007, October). Negotiating care: Power relationships within families providing home-based dementia care. Canadian Association on Gerontology. Calgary, Alberta.
   
   
9. Ward-Griffin, C., Oudshoorn, A., Bol, N., & Clarke, K. (2006, April). Supporting mother-daughter relationships within dementia care. 25th Annual Conference, Ontario Gerontology Association. Toronto, Ontario.
   
   
10. Ward-Griffin, C., Bol, N., & Oudshoorn, A. (2005, May). Older women with Alzheimer’s disease receiving care from their daughters: A burden or a blessing?  The 18h Annual Nursing Research: The Path to Excellence. London, Ontario.