Patient partner engagement in public communication

 

Patient partners play an essential role in shaping CANSpine’s public communication. Over 12 months of collaboration, their feedback helped refine the website to ensure its content is clear, relevant, and engaging. They also guide how research findings are summarized and shared, helping translate complex information into language that connects with patients and the wider community.

Communication with the Patient Partner Advisory Group is also a key focus for CANSpine researchers. Multiple communication methods, early and frequent contact, and clear follow-up to share how feedback is used help maintain meaningful connection with partners.

Watch the video below that describes how the Patient Partner Advisory Group shapes CANSpine communication: